Field of Pediatrics (Part 2)
CHILDREN OF MIGRANT WORKERS.
Families facing economic, social, or political hardship have been forced to leave their land and homes in search of better opportunities; such migrations are often within a country or between neighboring countries. Both industrialized and developing countries experience these migrations.
In the
The medical problems of children of migrant farmworkers are similar to those of children of homeless families: increased frequency of infections (including HIV), trauma, poor nutrition, poor dental care, low immunization rates, exposures to animals and toxic chemicals, anemia, and developmental delays.
Among the most substantial migrant populations in the world is
HOMELESS CHILDREN.
Families with children are the fastest growing segment of the homeless population in the
Homeless children have an increased frequency of illness, including intestinal infections, anemia, neurologic disorders, seizures, behavioral disorders, mental illness, and dental problems, as well as increased frequency of trauma and substance abuse. Homeless children are admitted to
Homelessness exists worldwide. There are an estimated 3 million people in the 15 countries of the European Union who do not have a permanent home. In
Provision of adequate housing, job retraining for the parents, and mental health and social services are necessary to prevent homelessness from occurring. Physicians can have an important role in motivating society to adopt the social policies that will prevent homelessness from occurring by educating policy-makers that these homeless children are at greater risk of becoming burdens both to themselves and to society if their special health needs are not met.
RUNAWAY AND THROWN-AWAY CHILDREN.
The number of runaway and thrown-away children and youths in the
Thrown-aways include children told directly to leave the household, children who have been away from home and are not allowed to return, abandoned or deserted children, and children who run away but whose caretakers make no effort to recover them or do not appear to care if they return. The same constellation of causes common to many of the other special-risk groups is characteristic of permanent runaways, including environmental problems (family dysfunction, abuse, poverty) and personal problems of the young person (poor impulse control, psychopathology, substance abuse, or school failure). Thrown-aways experience more violence and conflicts in their families.
In the
The issue of runaway youths is very complex in many developing nations, where in many instances the youth may be orphaned and/or leaving situations of forced sex or other abusive situations. In 2003, there were an estimated 15 million HIV orphans in
INHERENT STRENGTHS IN VULNERABLE CHILDREN AND INTERVENTIONS.
By age 20–30 yr, many children in the
Certain biologic characteristics are associated with success, such as being born with an accepting temperament. Avoidance of additional social risks is even more important. Premature infants or preadolescent boys with conduct disorders and poor reading skills, who must also face a broken family, poverty, frequent moves, and family violence, are at much greater risk than children with only 1 of these risks. Perhaps most important are the protective buffers that have been found to enhance children's resilience because these can be aided by an effective health care system and community. Children generally do better if they can gain social support, either from family members or from a nonjudgmental adult outside the family, especially an older mentor or peer. Providers of medical services should develop ways to “prescribe” supportive “other” persons for children who are at risk. Promotion of self-esteem and self-efficacy is a central factor in protection against risks. It is essential to promote competence in some area of these children's lives. Prediction of the consequences of risk is never 100% accurate. However, the confidence that, even without aid, many such children will achieve a good outcome by age 30 yr does not justify ignoring or withholding services from them in early life.
A team is needed because it is rare for 1 individual to be able to provide the multiple services needed for high-risk children. Successful programs are characterized by at least 1 caring person who can make personal contact with these children and their families. Most successful programs are relatively small (or are large programs divided into small units) and nonbureaucratic but are intensive, comprehensive, and flexible. They work not only with the individual, but also with the family, school, community, and at broader societal levels. Generally, the earlier the programs are started, in terms of the age of the children involved, the better is the chance of success. It is also important for services to be continued over a long period.
THE CHALLENGE TO PEDIATRICIANS.
Concerns about the aforementioned problems of children throughout the world have generated 3 sets of goals. The 1st set includes that all families have access to adequate perinatal, preschool, and family-planning services; that international and national governmental activities be effectively coordinated at the global, regional, national, and local levels; that services be so organized that they reach populations at special risk; that there be no insurmountable or inequitable financial barriers to adequate care; that the health care of children have continuity from prenatal through adolescent age periods; and that every family ultimately have access to all necessary services, including developmental, dental, genetic, and mental health services. A 2nd set of goals addresses the need for reducing unintended injuries and environmental risks, for meeting nutritional needs, and for health education aimed at fostering health-promoting lifestyles. A 3rd set of goals covers the need for research in biomedical and behavioral science, in fundamentals of bioscience and human biology, and in the particular problems of mothers and children.
The unfinished business in the quest for physical, mental, and social health in the community is illustrated by the disparities with which deaths due to disease, injuries, and violence are distributed among white, black, and Hispanic children in the
PATTERNS OF HEALTH CARE
In 2002, children younger than 18 yr made ≈232 million patient visits to
In 2002, there were 80 hospitalizations per 1,000 children, down from 1997 (91/1,000 children), but up from 2000 (76 per 1,000 children). White children are less likely to be hospitalized than black or Hispanic children, but more likely than Asian children. Poor children are nearly twice as likely as non-poor children to be hospitalized. Insurance coverage also appears to reduce hospital admissions that are potentially manageable in an ambulatory setting.
Health care utilization differs significantly among nations. In most countries, however, hospitals are sources of both routine and intensive child care, with medical and surgical services that may range from immunization and developmental counseling to open heart surgery and renal transplantation. In most countries, clinical conditions and procedures requiring intensive care are also likely to be clustered in university-affiliated centers serving as regional resources—if these resources exist.
In the
Patterns of health care vary widely around the globe, reflecting differences in the geography and wealth of the country, the priority placed on health care vs other competing needs and interests, philosophy regarding prevention vs curative care, and the balance between child health and adult health care needs. The significant declines in infant and child mortality enjoyed in many of the developing countries in the past 3 decades have occurred in the context of support from international agencies like UNICEF, WHO, and the World Bank, bilateral donors (the aid provided from one country to another), and nongovernmental agencies to develop integrated, universal primary pediatric care with an emphasis on primary (vaccination) and selected secondary (oral rehydration solution [ORS], treatment of pneumonia and malaria) prevention strategies.
PLANNING AND IMPLEMENTING A SYSTEM OF CARE
Through much of the 20th century, pediatricians were primarily focused on the treatment and prevention of physical illness and disorders. Currently, physicians caring for children, especially those in developed countries, have been increasingly called on to advise in the management of disturbed behavior of children and adolescents or problematic relationships between child and parent, child and school, or child and community. They are increasingly concerned with problems of mental, social, and societal health. The medical problems of children are often intimately related to problems of mental and social health. There is also an increasing concern about disparities in how the benefits of what we know about child health reach various groups of children. In both developed and developing nations, the health of children lags far behind what it could be if the means and will to apply current knowledge were focused on the health of children. The children most at risk are disproportionately represented among ethnic minority groups. Pediatricians have a responsibility to address these problems aggressively.
Linked with these views of the broad scope of pediatric concern is the concept that access to at least a basic level of quality services to promote health and treat illness is a right of every person. Among children in the
New insights into the needs of children have reshaped the child health care system in other ways. Growing understanding of the need of infants for certain qualities of stimulation and care has led to revision of the care of newborn infants and of procedures leading to an adoption or to placement with foster families. For handicapped children, the massive centralized institutions of past years are being replaced by community-centered arrangements offering a better opportunity for these children to achieve their maximum potential.
HEALTH SERVICES FOR AT-RISK POPULATIONS.
Adverse health outcomes are not evenly distributed among all children, but are concentrated in certain high-risk populations. At-risk populations may require additional, targeted, or special programs designed to be effective with unique populations. All nations, regardless of wealth and level of industrialization, have subgroups of children at particular risk, requiring additional services.
In the
Many industrialized nations have adapted different “safety net” systems to assure adequate coverage of all youth. Many of these programs provide health insurance for all children, regardless of income, hoping to avoid problems with children losing insurance coverage and access to health care due to changes in eligibility by providing a single form of insurance that all providers accept. The response of developing countries to the issue of universal access to care for children has been uneven, with some providing no safety net, but many having limited universal or safety net services.
To address the special needs of Native Americans in the
Recognizing the health needs of migrants in the
The
In
COSTS OF HEALTH CARE
The growth of high technology, the increasing number of people older than 65 yr, the redesign of health institutions (particularly with respect to the needs for and the uses of personnel), the public's demand for medical services, the increase in administrative bureaucracies, and the manner in which the costs of health care are paid have driven the costs of health care in the United States up to a point at which they represent a significant proportion of the gross national product. Although children (0–18 yr) represent about 25% of the population, they account for only about 12% of the health care expenditures, or about 60% of adult per capita expenditures. Efforts to contain costs have led to revisions of the way in which physicians and hospitals are paid for services. Limits have been set on the fees for some services, capitated prepayment and various managed care systems flourish, a program of reimbursement (diagnosis-related groups [DRGs]) based on the diagnosis rather than on the particular services rendered to an individual patient has been implemented, and a relative value scale for varying rates of payment among different physician services has been instituted. These and other changes in the system of financing health services raise important ethical, quality of care, and professional issues for pediatricians to address.
Health care costs have been better contained in most other industrialized nations, the majority of which also enjoy lower childhood mortality rates than does the
EVALUATION OF HEALTH CARE
The shaping of health care systems to meet the needs of children and their families requires accurate statistical data and difficult decisions in setting priorities. Along with growing concerns about the design and cost of health care systems and the ability to distribute health services equitably has come increasing concern about the quality of health care and about its efficiency and effectiveness. There are large local and regional variations among similar populations of children in the rates of use of procedures and technology and of hospital admissions. These variations require continuing evaluation and explanation in terms of the actual impact of medical and surgical services on health status and the outcome of illness.
The Institute of Medicine (IOM) issued a report, “Crossing the quality chasm: A new health system for the 21st century” in 2001. This report, challenging American physicians to renew efforts to focus not just on access and cost, but also on quality of care, has been furthered in several pediatric initiatives, including but not limited to: specific initiatives for monitoring child health outlined in the IOM report “Children's Health, the Nation's Wealth,” challenge/demonstration grants funded by the Robert Wood Johnson Foundation, the National Initiative for Children's Healthcare Quality, and training initiatives by the Federation of Pediatric Organizations. Importantly, each of these initiatives is calling for the establishment of measurable standards for assessment of quality of care and for the establishment of routine plans for periodic reassessment thereof. Efforts have been initiated at some medical centers to establish evidence-based clinical pathways for disorders (such as asthma) where there exists sound evidence to advise these guidelines. Pediatricians have developed tools to evaluate the content and delivery of pediatric preventive “anticipatory guidance,” the cornerstone of modern pediatrics.
Increased attention has been focused during residency training and as part of continuing education on the importance of providing pediatricians with the skills to communicate effectively with parents and patients. These efforts are having an impact, with evidence that 66% of children are receiving good or excellent preventive care with no disparities according to race or income level. The increased focus on quality improvement in pediatric practice is reflected in the pediatric residency training competency requirements of practice-based learning and improvement- and system-based practice.
ORGANIZATION OF THE PROFESSION AND THE GROWTH OF SPECIALIZATION
The 20th century witnessed the formation of professional societies of pediatricians around the globe. Some of these societies, such as the American Board of Pediatrics (ABP), are concerned with education and the awarding of credentials certifying competence as a pediatrician and/or a pediatric subspecialist. At the beginning of 2004, the ABP reported that there were ≈79,000 board-certified pediatricians. Among those presenting for 1st time certification to the ABP in 2003, 80% were American Medical Graduates (20% were International Medical Graduates) and 63% were women. Other societies are primarily concerned with organizing members of the profession in their country or region to dedicate their efforts and resources toward children. In the
The amount of information relevant to child health care is rapidly expanding, and no person can become master of it all. Physicians are increasingly dependent on one another for the highest quality of care for their patients. About 25% of pediatricians in the
The growth of specialization within pediatrics has taken a number of different forms: interests in problems of age groups of children have created neonatology and adolescent medicine; interests in organ systems have created pediatric cardiology, neurology, child development, allergy, hematology, nephrology, gastroenterology, child psychiatry, pulmonology, endocrinology, and specialization in metabolism and genetics; interests in the health care system have created pediatricians devoted to ambulatory care, emergency care, and intensive care; and, finally, multidisciplinary subspecialties have grown up around the problems of handicapped children, to which pediatrics, neurology, psychiatry, psychology, nursing, physical and occupational therapy, special education, speech therapy, audiology, and nutrition all make essential contributions. This growth of specialization has been most conspicuous in university-affiliated departments of pediatrics and medical centers for children.
In the
NEED FOR CONTINUING SELF-EDUCATION
The explosion of information has also created new challenges for continuing education. In earlier years, new information in any field of medicine was easily accessible through a relatively small number of journals, texts, or monographs. Today, relevant information is so widely dispersed among the many journals that elaborate electronic data systems are necessary to make it accessible. The Internet has dramatically improved access to information by physicians and patients, but judgment about the quality, clinical significance, accuracy, bias, and appropriate use of such information is a challenge. In 2002, 95% of pediatricians surveyed reported using a computer in the office; 50% reported accessing the Internet daily, most for medical information. One third used a personal digital assistant, most frequently for scheduling and for access to pharmacology references. Only 14% reported using email to communicate with patients, although about 50% would accept prescription refill requests by email. The American Board of Pediatrics and the
Whereas the Internet is important in the
There is no touchstone through which physicians can ensure that the process of their own continuing education will keep them abreast of advancing knowledge in the field, but they must find a way to base their decisions on the best available scientific evidence if they are to discharge their responsibility to their patients. An essential element of this process may be for physicians to take an active role, such as participating in medical student and resident education. Efforts in continuing self-education will also be fostered if clinical problems can be made a stimulus for a review of standard literature, alone or in consultation with an appropriate colleague or consultant. This continuing review will do much to identify those inconsistencies or contradictions that will indicate, in the ultimate best interest of patients, that things are not what they seem or have been said to be. Physicians still learn most from their patients, but this will not be the case if they fall into the easy habit of accepting their patients' problems casually or at face value because the problems appear to be simple.
The tools that physicians must use in dealing with the problems of children and their families fall into three main categories: cognitive (up-to-date factual information about diagnostic and therapeutic issues, available on recall or easily found in readily accessible sources, and the ability to relate this information to the pathophysiology of their patients in the context of individual biologic variability); interpersonal or manual (the ability to carry out a productive interview, execute a reliable physical examination, perform a deft venipuncture, or manage cardiac arrest or resuscitation of a depressed newborn infant); and attitudinal (the physician's unselfish commitment to the fullest possible implementation of knowledge and skills on behalf of children and their families in an atmosphere of empathic sensitivity and concern). With regard to this last category, it is important that children participate with their families in informed decision-making about their own health care in a manner appropriate to their stage of development and the nature of the particular health problem.
The workaday needs of professional persons for knowledge and skills in care of children vary widely. Primary care physicians need depth in developmental concepts and in the ability to organize an effective system for achieving quality and continuity in assessing and planning for health care during the entire period of growth. They may often have little or no need for immediate recall of esoterica. On the other hand, consultants or subspecialists not only need a comfortable grasp of both common and uncommon facts within their field and perhaps within related fields, but also must be able to cope with controversial issues with flexibility that will permit adaptation of various points of view to the best interest of their unique patient.
At whatever level of care (primary, secondary, or tertiary) or in whatever position (student, pediatric nurse practitioner, resident pediatrician, practitioner of pediatrics or family medicine, or pediatric or other subspecialists), professional persons dealing with children must be able to identify their roles of the moment and their levels of engagement with a child's problem; each must determine whether his or her experience and other resources at hand are adequate to deal with this problem and must be ready to seek other help when they are not. Among the necessary resources are general textbooks, more detailed monographs in subspecialty areas, selected journals, access to Internet materials, audiovisual aids, and, above all, colleagues with exceptional or complementary experience and expertise. The intercommunication of all these levels of engagement with medical and health problems of children offers the best hope of bringing us closer to the goal of providing the opportunity for all children to achieve their maximum potential.